What Is The Cystic Fibrosis Trust?
The Cystic Fibrosis Trust is the UK's only national charity dedicated to all aspects of Cystic Fibrosis (CF). It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with Cystic Fibrosis.
In order to carry out this important work The Cystic Fibrosis Trust set themselves a fundraising target of £8 Million per year. The money is then distributed to the areas of most need and greater impact.
Where Does The Money Go?
Research
The Cystic Fibrosis Trust funds research into finding the cure for CF. They also research more into the serious symptoms and complications of the disease. This work is vital for people living with Cystic Fibrosis. Around £4 million a year is spent on Research.
Gene Therapy
The faulty gene that causes Cystic Fibrosis was identified in 1989, this has led to research being able to look at two ways of correcting this fault.
*Gene Therapy - Replacing The Faulty Gene With A Healthy Copy
* Protein Repair - Repairing Or Replacing The Faulty Protein.
Controlling Infection And Inflammation.
Until some form of gene correction becomes available, it's essential to find out more about reducing lung infection and damping down tissue-damaging inflammation.
Clinical Support
Cystic Fibrosis is a complex disease requiring considerable specialist treatment. The CF Trust has helped to set up and staff 41 specialist CF treatment centres in the UK.
Family Support
The Family Support service was established in 1989 to provide essential support to people with CF and their families. This support begins at diagnosis and continues through adolescence and adulthood.
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Information taken from the Cystic Fibrosis Trust.